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  • #999019
    Burgo
    Member
    • Total posts: 2,099

    Many of you may know that I had my Prostate removed last year and Im classified as a Cancer Survivor.
    The journey has been an interesting one discovering what is and what is not available for Cancer Survivors.
    The one thing that keeps coming up is that exercise is important to the recovery from cancer, and the prevention of cancer recurring.
    The Cancer Council has provided a small gym at Concord Hospital and it does a magnificent job for such a confined space and minimal equipment.
    The physiologist that runs the gym has to restrict session times due to lack of funding, which means she cant see to the need of many cancer survivors

    The reason for my post is to ask would any of you like to help sponsor this small gym, it dose not have to be much as I know many of you would like to contribute but every dollar will help.
    The other thought was if we gave our donations to Flying Solo then the sponsor would be Flying Solo encompassing all of you that belong to this fantastic community, which I joined back in 2008.
    At this stage it is a thought running around my head but I need some feed back so that I can talk with the Cancer Council, to see if there are other gyms that cater for Cancer Survivors.
    Burgo

    #1217357
    Peter – FS Administrator
    Member
    • Total posts: 1,889

    Hey Burgo,

    Good to see you in the threads and hope everything is going well!

    It sounds like an overlooked area. I know the Cancer Council has a number of fundraising initiatives during the year like Daffodil Day and Australia’s Biggest Morning Tea etc… Not sure if they money could be allocated to the gyms, but I wonder if you got behind one of those we could give you shout outs and sponsorship? Alternatively if it’s exercise related, I wonder if you could join one of the fundraising walks or runs and we could sponsor you, to provide some incentive!

    Let us know how you go with your discussions and FS would be happy to give you a donation and get behind you.

    Cheers, Peter

    #1217358
    Burgo
    Member
    • Total posts: 2,099

    Thanks Peter that’s what im currently investigating. If these gyms are all suffering with financial support then I would like to set something in motion that will enable them to function effectively.
    I appreciate your comments and support as I have for many years.
    As a Cancer survivor Im learning and the dedication shown to me by these physiologists is just unbelievable.
    They design exercises that are to get the body strength back as quickly as possible, and they don’t let you slack off. At 75 going on 76 they have me doing 30 push ups at a time, plus 45 leg presses. Its about building your strength and building your confidence.
    Again thank you Peter and I will keep you posted .

    #1217359
    Burgo
    Member
    • Total posts: 2,099

    Im starting a conversation with the Oncologist that started this Cancer survivorship gym. Its possibly one of the best kept secrets ive come across yet.
    Apparently they have been trialling this gym to see what affect it has on cancer survivors, so at this stage it is unique. Finances is its biggest threat and hopefully by this time next week I will have the full story.
    From what ive been seeing this will be a success as the survivors I have spoken with have all said how much the gym has helped them physically and in
    getting their confidence back.
    The gym is open to all cancer survivors going through Concord Hospital, but it is hoped it can be introduced to other Hospitals.
    As I find out more I will post here keeping you all informed.

    #1217360
    Paul – FS Concierge
    Keymaster
    • Total posts: 3,193

    Impressive stats their Burgo!

    #1217362
    Burgo
    Member
    • Total posts: 2,099

    The Concord Survivorship gym is the only one of its kind.
    The funding is very limited as at this point in time there is no funding from the Cancer Council.
    Two days a week are funded by the Sydney local health district /Nsw health.
    One day a week has been funded from the medical oncologist staff specialist trust fund. Which unfortunately runs out February 1,2019.
    One day a week is from fund raising raffles. The fifth day is currently coming from the oncologists research group at the university for one of its research studies.
    The gym equipment was bought through a grant 15 years ago.
    This gym and the research being carried out there is vital in the ongoing support for cancer survivors. I will be having further discussions with the oncologist on Thursday im sure you will be happy to support it.
    Thanks Patrick

    #1217363
    Burgo
    Member
    • Total posts: 2,099

    Thinking about my last post this Cancer Survivorship gym definately needs our help, as Im sure you would agree.
    I am having talks at the gym with the oncologist on Thursday.

    #1217364
    Peter – FS Administrator
    Member
    • Total posts: 1,889

    Thanks Burgo. I sent you my email address as mentioned so I look forward to hearing from you.

    #1217365
    Burgo
    Member
    • Total posts: 2,099

    Haven’t received it, may have gone to an inactive address.
    If you would send it to patrickburgess94@gmail.com will be grateful .
    I’ve had to reschedule my meeting till next Tuesday (I was going to blame my granddaughters cooking, but it was something else).

    #1217366
    Peter – FS Administrator
    Member
    • Total posts: 1,889

    Hope you’re feeling better. I’ve emailed you to your address. Have a great weekend.

    #1217367
    Burgo
    Member
    • Total posts: 2,099

    One of these days I will keep my big mouth shut.
    I have had the meeting with the oncologist and the exercise physiologist, It turns out that the gym is a small but vital part of The Sydney Survivorship Centre at Concord Hospital. The research being done there is important in getting the Cancer Survivor back physically to normality as quickly as possible, through exercise..
    The vision of the Sydney Survivorship centre” is for all people diagnosed with cancer to live the lives they want in the best health possible after that life-changing diagnosis”
    Something Ive learnt to appreciate.
    So why should I have kept my big mouth shut.
    I have been ask to join the team providing them with management skills they lack, and I have volunteered to do so. You may see me more often asking for suggestions, as the age of 75 Im not up to speed with all the modern concepts.

    One thought that had run across my mind, was should I start a charity, but one of my retired legal friends from OMNinc (Older Mens Network Incorporated) has suggested that my original thought of having Flying Solo become a sponsor is a better way and less messy.
    So what are your thoughts on this

    #1217368
    Burgo
    Member
    • Total posts: 2,099

    Thanks Alexander,
    Since I have become involved in this project , I have met a lot of Cancer survivors. Some have had little follow up but none have had the opportunity to have a specialist physiologist show them specific exercises for their cancer recovery.
    So how many members within this community are cancer survivors.
    Don’t be shy this is something you should be proud of.
    I really am looking to your replies, and how many of you were advised to do exercise and what type of exercise.
    If we could set up a phone service then many of these exercises can be done at home, but I would need to clear this with the oncologist in charge.
    Should you live in Sydney there is a benefit concert in November at the Strathfield Town Hall, featuring the Strathfield Symphony Orchestra. The theme will be Movie Music. If you would like to know more I will see if I can get a link so that you can book direct.

    #1217369
    bb1
    Participant
    • Total posts: 4,485
    Burgo, post: 262504, member: 58 wrote:
    Thanks Alexander,
    Since I have become involved in this project , I have met a lot of Cancer survivors. Some have had little follow up but none have had the opportunity to have a specialist physiologist show them specific exercises for their cancer recovery.
    So how many members within this community are cancer survivors.
    Don’t be shy this is something you should be proud of.
    I really am looking to your replies, and how many of you were advised to do exercise and what type of exercise.

    Not a cancer survivor myself, but having supported a very close friend at the time through all of trials and tribulations of breast cancer, including surgery, chemo, etc, I know that there was no mention of exercise, and definitely no physiologist, which on reflection considering the impacts would have being a great idea. Don’t take that as a negative comment her treatment in every other way was excellent, it was my an observation on your question.

    So this sounds like an excellent project you are involved in.

    PS. as an aside she has just gone over the 5 year remission period.

    PPS. Having being the primary support/care person and having spoken to a few over the time, the other thing overlooked in the whole cancer battle, is support for the support person, it is non existent, yet they are as vital a part of the process and recovery as specialist teams.

    #1217370
    Burgo
    Member
    • Total posts: 2,099

    Bert support is vital and the Concord Cancer Survivorship Centre encourages Carers to come along to the various activities run by the Centre, where you get to meet other carers. Should be having a concern there is always someone to discuss your concerns with.
    You should be Congratulated in helping your wife to reach this point, and I bet it wasn’t easy. Cancer seems to have a habit of wanting to change our personality sometimes.
    I noticed it did with me, but the exercise program I’ve been given is helping me to get back to who I am.
    Six months ago I would have laughed at the thought of me doing exercise, but now I seem to be doing it quite unintentional.
    I’ll make some more enquiries about carers support.

    #1217371
    bb1
    Participant
    • Total posts: 4,485
    Burgo, post: 262535, member: 58 wrote:
    your wife

    Assumptions are sometimes a bad thing to make!!!!!!!!!!!! LOL

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